God is able...

Baby Jay had a good doctor's appointment at ACH today.  It went just as I expected.  I have to give it to them they were very warm and welcoming.  We are seeing the Palliative care team which is a team designed for special needs kids.  Today we met with the Medical Director of the team, two nurses, a social worker and a speech pathologist all in an hour and a half.  They answered all of our questions and they drew her blood to retest her for trisomy.  I think she held her breath more than she cried.  The triage nurses kept telling her to stop holding her breath because she was scaring them.  I'm at so much peace when she holds her breath because I know God is going send the next one right on time just as He did in the beginning with Adam and Eve.  God is definitely in the business of breathing the breath of life through the nostrils of man.  He is so good.  They made if very clear that they felt like the first test was accurate but they would retest her because it makes me feel better.  We just want to do all that we as parents should do for our angel baby.  When you're talking about life and death of our child, we don't want to have any regrets saying we should have done this or we should have done that.  They also told me not to worry much about the Pyloric Stenosis.  If she does have it the good thing is that it's something that can fix itself.  Jay's gained 1/2 a pound this last week which puts her at 5 lbs 1 oz, so since she's taking her milk good and gaining weight we can let it fix itself instead of putting her under anesthesia.  They were really good to us and Baby Jay.  Bless the doctors hearts.  Don't get me wrong I'm an advocate for knowledge but having all that knowledge still limits them to a square box.  I'm so thankful that they don't and can't measure up to God.  I'm so thankful that God isn't in that square box.  The doctor kept saying "when she dies".  Wouldn't it be something to walk into a doctor's office and hear the doctor say "when the Lord decides"?  In the end it didn't matter to me because I made it clear that it was in God's hands.  I'm still praying God's will.  I love that little girl, we all do.  God knows my heart and I trust Him to follow His plan for all of us.  Whatever He chooses I trust that He'll prepare us.  I'm focusing on two things, His POWER and living in the NOW.  I'm not worried about what tomorrow holds because He tells me not to.  It'll take about a week to get Jay's test results back so I'm definitely still in full prayer mode as always.  My little firecracker (as Charlie calls her) is fighting on with her little strong self.    God is definitely able, willing, fully capable and full of goodness to do any and all things and that's what He asks us to believe so that's what I choose to believe.  I love and trust my God, they just don't know how much, but God knows my heart.  The song on my heart tonight, is "God is able to do just what he said he would do, He's gonna fullfill every promise to you.  Don't give up on God, cause he won't give up on you, He's able."  Praise God for today. God is good.

Baby Jay ready for her appointment today!

Today's Prayer...

Praying that God Almighty cover us today with His mercy, grace, favor and goodness that He is filled with! God is good!